Message Board
Here you can post your messages of support for Maya, volunteer your help, and share details of donations collected. Don't forget to post a message letting Maya and her family know what fundraising events you are organising or raising any queries you may have. To leave a message, complete the form on the right-hand side of the page.
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309 message board entries Displaying page 1 of 31
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22/04/2010
Hi
News today that the latest scan shows stability although part of the tumour is active.
Was quite scared hearing that part of the tumour is alive trying to find new ways to attack although the medication seems to be keeping it at bay.
We will be having conversations with The Burzynski clinic and the local hospital to discuss the results.
I will keep everyone informed and once again thankyou for showing a continued interest in Maya.
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05/03/2010
Hi everyone
Was reminded today that I havent updated this for a while.
Having problems putting messages on so will try again.
Maya had many problems in the new year.Firstly it was thought that she wasnt growing and that puberty had started so young.We had many tests which thankfully showed that growth shouldnt be a problem and that puberty hadnt yet started.
Maya is still on medication as tumour is still in her head.It hasnt grown for along time and we just hope that now it will get smaller as Dr Burzynski said it would.
Will be looking at going to USA early this year.
Maya is having her latest scan should be this month and I will keep you all posted on the results.I really hope it is good news as i dont know how we would cope if it wasnt.
I have found things mentally very tuff this year dealing with the thought of Maya not growing etc and the nerves we get at each scan.
I will be so glad when everything ends and fingers crossed with a good result.
As most of you know I have been keeping in contact through facebook and texts etc whilst website wasnt functioning well and I hope to have a healthy woman to show you all and thankyou so much for givijng her this chance.
Steven and family.
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27/11/2009
Hello everyone.
Maya is still stable and her condition hasnt got any worse.
She is still on all medications which are fed ex over monthly.
she is going to have her second cataracht operation after xmas.
I really hope that she will continue to be stable or even better fully.
thank you all so much we really appreciate all your kind thoughts.
thankyou all for allowing maya to have this and hopefully many more christmas joy with us.
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18/10/2009
Hi
I would like to thank everyone who contributed to the event at West Ham on Thursday night.
Especially Steve Scott,Kevin,Harry Martin and Jill Moore and TJ.
The event considering the recession was wonderful and will help greatly to continue Mayas treatment in America.
We cannot express more our gratitude to these people who didnt know us last year yet have helped us so much.
You will be freinds for life and I hope we can repay you by getting maya to adulthood and she will forever be grateful to you for what you have done.
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25/08/2009
Hi everyone we are going to have another event at west ham united within the next couple of months which will be really helpful at this current time.
If anyone is interested can you let me know and I will pass on more details when I find out
thankyou once again so much for keeping Maya with us
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16/08/2009
Hello Steven
I dont know how you keep going but you do. words can not explain how I feel for you. I have been though many set backs with my own daughter. you will find the strength to carry on, being a dad and staying strong is tough, tell me about it. Thinking about you all, stay strong.
Kevin
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12/08/2009
I dont know how this family is continuing to live at the moment we have just found out that Mayas cataracts in her eyes are non existent and she would of gone blind if this hadnt been spotted today.
We yet again have to see our daughter go under the knife twice to replace them.
This combined with worrying about her treatment costs which are really low after 14 months we are not in a good place but once again we will keep strong god knows how we do it.
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27/07/2009
Hi everyone
Latest scan results show no growth.
Burzynski wants Maya to stay on the treatment until it completely goes.
We are hoping to go to America soon.
Maya seems well and is enjoying the summer holidays with her brother.
I can finally teach her to swim now which she has always wanted to do so we go at the weekends with Bailey.
I will keep you all updated
Steven
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15/07/2009
just a note to say still thinking and praying for you all.
best wishes
Kevin
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08/07/2009
Hi,
Hope you are all ok and the scan results come through soon.Always thinking of you all and hope to meet up one day.
love Carolle
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