Message Board
Here you can post your messages of support for Maya, volunteer your help, and share details of donations collected. Don't forget to post a message letting Maya and her family know what fundraising events you are organising or raising any queries you may have. To leave a message, complete the form on the right-hand side of the page.
|
309 message board entries Displaying page 2 of 31
|
n/a
01/07/2009
Hi Michelle thanks for your message we really appreciate it.
Maya is having her scan today at Queens hospital so the nerves are back.
She seems well fingers crossed it will be okay again.
Hopefully we can go America soon aswell as Maya needs to be checked out by her doctor.
thanks everyone
Steven
|
n/a
26/06/2009
Hi Maya and Family
This is Michelle from Freckles and Friends. Just a little message to say always thinking of you and to let you know we are here to help out with any fund raising.
Take care xxxxx[Bye]
|
n/a
05/06/2009
Hi everyone.
Maya is happy today she has had hair extensions put in as her hair is not growing properly.
Its the first time she has had long hair for 3 years she loves it.
Looks like a scan will be done soon so getting nervous.
Will have to go to america again in the summer havent got a date yet.
Will keep you all informed
Steven
|
n/a
27/05/2009
Hi everyone.
Maya is okay this week.
She has an infection which will be treated by antibiotics.
We are currently fighting to have scans on the NHS which has once again been refused.
We are hoping Queens will do this for her.
I will keep you posted
Steven
|
n/a
21/05/2009
Hi everyone sorry I havent updated for so long.
We have been trying to get life back to normal I have been back at work and really stressed as I was away for so long.
Maya is well which we are so happy about she will be continuing treatment at the Burzynski clinic for the forseeable future.
The tumour is stable but Doctor Burzynski has said that he wants it to be gone completely before we can come of treatment.
Maya will be returning to America some time in July for more scans and tests to see if the tumour is still stable or has gotten smaller.
Thankyou so much to all of you again we never could of got to this stage without you all.
I know alot of you put so much time and effort into helping us and I just hope Maya will be cured to justify all you did.
Considering what we were told by the NHS we are so lucky to still have Maya with us.
Things have been tough with the pound dropping but nothing will stop me seeing this treatment through we have no other choice than to carry on treatment for as long as it takes as we cannot risk stopping now as there is still tumour in the brain.
I hope you can all see Maya soon to see how well she is she is aware of everything you all did.
Thankyou Steven,Natasha maya and Bailey
|
n/a
24/03/2009
Glad to see that Maya is making good progress and that she tolerated the Burzynski treatment well
|
n/a
13/02/2009
hi Maya and family. good to speak to you Steve, and hope we may see Maya soon. Good news that things are looking up a little, whats important is you all try and enjoy the next few months till Texas comes around again!
Love from Dave and Lorraine
|
n/a
12/02/2009
Steve and family. Sounds good news.
Love to all of you. x
|
n/a
10/02/2009
God bless you all, my thoughts are with you.
I will make a donation as every little bit helps.
Sam White
|
n/a
10/02/2009
Hi everyone
Maya is doing very well.
Burzynski is very happy and says she is on the way to remission.He will need to however confirm this after another couple of scans.
We were seen at royal marsden in surrey yesterday and they have agreed to takeover from ormand street in scans etc.This was very good news.The doctor found it hard to believe how ormand st couldnt take her back on books for care.
He has also more knowledge of the treatment that Burzynski uses and said that he feels something is working.
We are due in Texas in 6 months time which will all being well allow the family to settle for a while.
Speak soon
|
|
Please make a donation NOW! |
You can make a difference by donating NOW!
|
|
|
First 
Previous ...
