diseyland paris
maya perin skippen logo
maya perrin skippen


Message Board
Here you can post your messages of support for Maya, volunteer your help, and share details of donations collected. Don't forget to post a message letting Maya and her family know what fundraising events you are organising or raising any queries you may have. To leave a message, complete the form on the right-hand side of the page.

309 message board entries   Displaying page 5 of 31

n/a
06/10/2008

Still no scan results Ormand Street keeping us waiting due to us being struck of NHS.
It has now been nearly two weeks since scan and they obviously no the result but said they will send in the post.
Also waiting on our final NHS blood results which has also been two weeks and they cannot find them on there system.
This is insane
Thankyou to all the people on the Madeline forum who are giving such kind words of support.
Not sure why the sky forum closed?
Thankyou all so much.
n/a
05/10/2008

Hi everyone.
Maya seems okay we are waiting on scan results which have taken ages due to Maya being struck off the NHS.
We have even had to wait 2 weeks so far for her final blood and urine test on the NHS.
We hope that the scan will show good news as Maya looks better than I have ever seen her.
The NHS have really dissapointed us with there attitude as all we are looking for is basic care.
After all the previous problems with the NHS I find it hard to say a good word about them.
I had a meeting with the head of Havering NHS and all the councillors of Havering on Friday and hope this can change things.
I then met with Andrew Rosindell who said he will write to Boris Johnson to try and get the decision reversed.
What upsets me is the way in which we were bullied into either going back on Chemo with Ormand Street and get Care or if we continued with the USA treatment we would be struck off.What sort of choice is that.
To deny any basic care is dangerous and careless as Maya needs supervision with her particular condition.
I will keep everyone informed and once again thankyou for all that you ahve done and continue to do for us.
n/a
26/09/2008

Link to forum where there is a thread of support and messages just for Maya x

missingmadeleine.forumotion.net

Please come and see, feel free to register.
Everyone wishes you the best.

Hope maya continues to grow stronger everyday.
n/a
24/09/2008

Hi Maya,

How are you? Are you still here in Houston? Give us a call or email us.
n/a
23/09/2008

Just read your appeal in
May magazine and decided to
donate. My thoughts and best wishes are with you all.

Maggie - Bristol
n/a
22/09/2008

Hi Maya and family
Glad your home and feeling better.
Thinking of you all, and always here for help with fundraising.
Take Care
Freckles and Friends
n/a
21/09/2008

Hi I have just taken my message of this site which I just wrote as we are not free to speak in this country as we might be sued by the NHS.
The same NHS who have denied Maya any form of NHS care unless she goes back on there Chemo.
We all know with previous things that have happend and now denial of care we would be on front page of all national papers and the news at 10.
Watch this space.
I am afraid I cannot say anymore as I dont know what the repurcussions could be.

n/a
20/09/2008

I heard about your apeal thru a friend [ Stephen M.]and decided to donate. All the best with your fundraising Maya and Family. God bless.[Angel]
n/a
20/09/2008

Hi I have just taken my message of this site which I just wrote as we are not free to speak in this country as we might be sued by the NHS.
The same NHS who have denied Maya any form of NHS care unless she goes back on there Chemo.
We all know with previous things that have happend and now denial of care we would be on front page of all national papers and the news at 10.
Watch this space.
I am afraid I cannot say anymore as I dont know what the repurcussions could be.
n/a
12/09/2008

Welcome hone guys and please call me Steven. Thinking of you all.

Fred curtis


Please make a donation NOW!
You can make a difference by donating NOW!
Credit cards
  Enter your message
Messages are moderated, and will not appear until they have been approved.

Enter your message below.

(Max characters 1,500 - including spaces)
Your message:


Smiles
To add a 'smiley' to your message click here.

Characters used: 
Characters remaining: 
Your name:  
Your email address:
Security code:
To help stop spam, please type the numbers that you see in the image below into the box.
This Is CAPTCHA Image